Is it me or is this group struggling for identity? I receive the newsletter, support the organization, and even link to it here, until they tell me that's not allowed without their permission of course. Realize CFIDS is not a killer, it's not AIDS/HIV, but we haven't gotten anything done in quite some time. Can't even get the name changed. Again, I do not mean to offend, if my one reader turns out to be the chairperson of CFIDS.org. Just a frustrated observation.
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