First Steps

Once I realized it was not Polymyositis - which seemed to be months before my Rheumatologist did, I settled in to learn about this wonderful thing that had taken my life hostage. A word about the net - everything is out there, all equally credible - and some of it pure trash. Initial treatments were aimed only at the symptoms of the disease - try to give me more energy, less pain in my joints and muscles, reduce the neurological mess my central nervous system had become. Some helped, but of course had no bearing whatsoever on the root causes of my condition - please note very carefully I said CAUSES - as CFS is a multiplicity of conditions. And, if I have learned anything in the years and dollars wasted looking for the right snake oil it is this - if you have 5 problems that together produce CFIDS, any treatment that addresses between 1-4 will ultimately do nothing for your overall condition. Comprehensive understanding and treatment is a necessity - and very few people have enough knowledge to even attempt this. But, don't despair, I'll keep updating, there is some good news although the jury is still definitely out.