In Your Head

This is a phrase I have heard once too often. One of my own family members called me a few years ago and while expressing enough concern to risk my getting angry with them, told me that they felt strongly enough about their opinion (based on what research I can only imagine) - that they had to tell me that they felt strongly that all of this was "all in my head" - I created it all. I wish I was so creative - this blog would be much better if I was. Let's face it, I've created two things in my lifetime - both my daughters - and when I did that I established a standard that was impossible to beat - since they are perfect, both of them - so I guess I stopped trying to create things.

Trouble is, in my talking with other PWC's, I think we spend a fair amount of time honestly (too honestly) evaluating whether all of this is in fact in our heads. I also understand that chronic fatigue is both a misnomer and an over generalization. It can be used to cover all sorts of things, and in today's rushed society, where we need instant gratification, people don't take the time to come to a clinical diagnosis - as I said, mine took over two years. My Rheumatologist didn't believe in the existance of CFIDS, believing that it was the adolescent manifestation of another immune/rheumatological disorder that had not matured to the point where it showed on clinical tests - trouble is, that never happened and it's 8 years later.

I am an easy going guy. I love my dog, my kids, my wife and pretty much anybody in my life - but don't tell me CFIDS is "all in my head" - you may not like the reaction you get. A bit touchy there...