Now it was time to start to see the specialists - as CFIDS, which nobody thought I had yet - is a disease diagnosed by exclusion - you eliminate all other possible causes and there at the bottom of the pile if good ole Chronic Fatigue. My initial and tentative diagnosis was Polymyositis. As my wife and I had a friend who had battled this for years, and has since died from it - we weren't excited at all. So the Rheumatologists came first. 3 different ones, none of whom agreed and all of whom threw drugs at me that didn't help in the slightest. The doctor I finally ended up with did not believe in CFIDS - which is a common problem for those of us blessed with this disorder. So much fun trying to convince your doctor that a) you're sick when all tests come back normal, and b) the disorder you've got actually does exist.
Spent over a year with the Rheumatologist looking under my finger nails to no avail. Then started the revolving door of doctors. Immunologists, Gastroenterologists, Opthamologists (yup), Neurologists (2), Pain specialists, Psychologists, Psychiatrists, Accupuncturinsts, Chinese Medical Practitioners - and the quacks who advertise they can cure anything as long as your willing to feed them money introveniously ($20 minimum) - and the really stupid thing is that these guys have WAITING LISTS months long to get in to see them, I think I at least covered the major groups here. It is NOT comprehensive.
Thursday, November 27, 2008
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