I saw my doctor yesterday. I should say that I've been in treatment for about 6 months now. I went for several years thinking that anyone who said that they could help do more than only treat symptoms was just after my money - which I just don't have that much of. So, I used my meds to keep the status quo and that was life. In many ways, life was good. I have a job that encourages me to work from home - so I can hold down a full time job - in this economy, very blessed there. I have a wife who truly understands and cares - and has temporarily ruined her own health helping me. My kids will come at the drop of a hat and pitch in when needed - and God answers prayer.
But - His will or not, my condition had not changed substantially in 5+ years until we found a clinic in June that actually knew what we knew about CFIDS. They understood, and had the facts to show that a good percentage of their patients, many of whom I spoke with, got back much of their lives after an average of 9 months of treatment. I started treatments, and within the first 3 months, was feeling much better. Would still be on track and probably will get back on track, but my wife's health has taken a turn for the worse. At my last doctor's visit, they started treating chronic infections - and that is not a lot of fun. They die off and they create toxins, which can really mess you up. Now, it is time to start Neurotoxins - which is similar, but associated with the root cause of brain fog - one of the most troubling symptoms of CFIDS.
I'm not up for another challenge right now...
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