It's been too long since my last entry but since I didn't know anyone was reading this, I didn't think it mattered. If you're hanging on every word I have two items for you: 1) Get a hobby, get a job - get a life... 2) I'm sorry for the delay - it's been a rough month with a lot of changes.
I have been injecting myself with Heparin daily in an effort to thin out my blood and the lining of the vessels - which tests have shown are several times the thickness of those of a normal person. As if I'd be normal if we fixed this! :0
They have adjusted up my anti-viral meds as well, and it's given me some wonderful side effects that have proven to be EXCEEDINGLY difficult to work through 5 days/wk. Fatigue is worse, cognitive difficulties and mental freeze ups happen more and more often, body temp is very much like one going through the height of menopause (I guess it's manopause for me) - but as you women know, or will soon, it's hell. Feeling like you've just broken a fever of about 102 is not fun, but that's pretty much all evening, every evening - sometimes all day. I've got a rash all over the upper portion of my body, which is one of the side effects listed of the virals I'm taking (which are like those given when you have shingles etc - except I take them for months instead of 7 days).
The job is suffering, I try harder, the stress increases, the sleep decreases and the spiral goes downward. Been there, done that could use the T-shirt because the one I'm wearing is soaked through to the bone. I have nightmares that have me waking up with my heart pounding in my chest, pulse about 120 and many times soaking wet as well - so there is just no rest in sleep anymore at all - which degrades everything else very quickly.
Sorry - I'm whining here, but every once in a while it just feels like too much - and that's why I started this blog in the first place. It feels good to put it out there, even if nobody's reading it. If you are reading this - I'll try not to keep this up so I don't lose you. If you have CFIDS/Fibro - I hope it helps in some way.
Sunday, March 29, 2009
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