Saturday, July 25, 2009
Time to Catch Up
Again, it's been a long time since my last update. Part of the nature of CFIDS. Over the past few months I have been in pharmaceutical hell of one kind or another. So much so that my doctor(s) and I have all agreed that it is time to just take stock and start over with a lot of things. I have been in treatment for 1 year at the clinic. Typical results are about 70 to 90 % improvement over that period of time. My results have been more like 30 %. Disappointing, but there were outside circumstances that kind of short circuited my recovery. So, it's back to the drawing board, with me taking an intermittent LOA from work and using 1 day each week to get treatments at the clinic. The IV's and the injections. My PCP just took 20 vials of blood yesterday in an effort to give me a baseline to start with. Detect any imbalances or other conditions that may have developed to complicate the matter. So - we move on. Frustrated, disappointed but still so much better off than many. Our doctor put one of his patients in touch with my wife Holly, because she was able to work so well with insurance coverage - and this woman has CFIDS, and recently fell and broke her back in several places. So in my life, there is never a time when I have to look far to see someone who is in worse shape than I. Disappointed I will count my blessings.
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