Anyone with CFIDS is used to having to prove the very existence of the illness in their lives. I've been no exception - I have a brother who has told me CFIDS is all in my head. Wish that could possibly be true. I'd also like to take whoever came up with the name Chronic Fatigue and string them up. If ever a name was a misnomer, this is the one. Frankly, I'd rather be called a drunk (if I drank that is). If fatigue was even one of the top 5 problems to work through, I'd accept it - but the way this condition ravages the central nervous system is by far the worst for me. For most of the time I've had this, if a light bulb blew out when I turned it on, that small pop would be enough to launch me into a migraine and the adrenaline would completely shut down the cognitive process - for up to 3 days. Im some ways I am better now, but with this multiplicity of conditions, when one gets better, one gets worse as well.
As I write this, just got a call that one of my friends from work (same age as me) is not expected to live through the night. Everytime I start to feel sorry for myself...
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